HARVARD – When Kaylin Church was born 11 years ago, she seemed like a perfectly healthy, happy baby.
It was not until a couple of years later that she began to manifest the signs of Rett syndrome, a rare neurological and developmental disorder. Developmentally, Kaylin is 18 months to 24 months old and unable to speak.
“It is a very rare disorder,” said Kaylin’s stepmother, Misty Gruenes. “She was about 2 when they realized something was wrong. They’re trying to find a cure.”
Recently, the Make a Wish Foundation granted Kaylin’s wish to visit Disney World. The Harvard family is hosting “Silent Angel,” a Rett Syndrome Awareness Motorcycle Dice Run and Benefit on Saturday.
“The proceeds will go to the Make-A-Wish Foundation,” Gruenes said. “We are hoping to raise enough to help them make the wishes of other terminally ill children come true.”
Motorcycle registration is from 10 a.m. to noon at 11219 White Oaks Road, Harvard.
The cost is $15 a bike with one rider and $25 a bike with two riders.
Participants also can register at Elkhorn Saloon 9 E. Walworth St., Elkhorn, Wis., at Farmers Inn, 15 Wisconsin St., Darien, Wis., and at Nelson’s Corners Inn, W9002 State Road, 11, Delavan, Wis.
The benefit will be from 4 to 10 p.m. in Sharon, Wis., at Kip and Deb’s Tavern, 184 Park Ave. The event will feature live music by The Soul Vitamins.
The cost is $10 for adults and $5 for children. Attendance is free for children 4 and younger.
Activities will include horseshoes, a silent auction, a dunk tank, a bounce house, drawings and raffles, volleyball and a pig roast and hot dogs.
“It’s going to be a very kid-friendly environment,” Gruenes said.
If you are unable to attend the fundraiser but still would like to contribute, donations also can be made at Harvard Savings Bank. For information, call Joe Church at 920-728-2939.