DBA Foundation wins $100K grant

CRYSTAL LAKE – Earlier this month, the Northwest Herald featured a story about a Crystal Lake teen with the rare blood disorder diamond blackfan anemia.

The story detailed the struggles of Prairie Ridge senior Nick Romita, who asked Facebook users to vote for the Diamond Blackfan Anemia Foundation to win grant money for research and awareness.

The results of the Chase Community Giving are in and the DBA Foundation was one of the top winners.

Chase had $5 million in donations to be split among charities picked by Facebook users.

The New York-based DBA Foundation will receive $100,000.

The DBA Foundation came in 11th out of more than 7,000 charities. The top charity received $250,000, and the next 10 were awarded $100,000 each. A slew of other charities will receive $50,000.

The DBA Foundation squeaked into the last $100,000 spot thanks to last-minute votes. It topped the next-closest charity by 721 votes.

“Each one of those votes over the past 14 days added to our win, not just in number, but in our hearts,” the DBA Foundation wrote on its Facebook page. “Early voters put us at the top of the leaderboard right from the start, inspiring us that we really could do this.”

DBA is a bone marrow failure syndrome known to afflict only a few hundred people nationally. DBA patients endure a lifetime of medical tests, procedures and hospitalizations. Treatment can lead to other medical problems, such as cancers, kidney problems and diabetes.

There is no cure for DBA, and money for research is limited. Because of the rarity of the disorder, families have raised most of the funds themselves.

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