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Parenthood, disability, identity

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Journalistically speaking, was this fresh ground?

It was. Each of the individual areas I was investigating had been written about extensively. There are hundreds of thousands of books on autism and a great many on Down syndrome and quite a lot on crime, but there was nobody who had actually looked at this particular commonality, of how do families who perceive themselves to be essentially normal respond to having a child whom they initially, at least, perceive to be aberrant, and how do they wrap their minds around the difficulty of dealing with that child, and in what way does the experience of parents who are dealing with that, with children who fit into all of the categories that I’ve listed in the book, how does that relate to the experience of all parenthood?

What surprised you about what you found?

I think I went into this project thinking, OK, I’m going to look at these terribly difficult situations and see how people have struggled with them and look at the nobility of their suffering, so I wanted to write about, you know, the grandeur of this experience. But what I didn’t really anticipate was how much genuine joy I would encounter, how many of these people talked about a deep and meaningful connection to their children and how many of them said that having had children who had any of these qualities had actually made them better, stronger, wiser, kinder people than they otherwise would have been. In the end I felt many of these parents ended up grateful for experiences they would have done anything to avoid.

How does that compare and contrast to your own parents and their reaction to you?

My parents took a little while to come through to acceptance. What I discovered in researching the book is love and acceptance are two different things, that you can love your child even before you’ve managed to accept your child. I found I had mistaken, as people do over and over again, some deficit or hesitancy in acceptance for a deficit of love. It took them a little while to accept having a child who is different. It takes everyone a little while, and my family actually did it reasonably quickly and reasonably well.

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